Healthcare Communication

Telling the
human stories
behind rare diseases.

Honest, engaging communication that bridges patients, clinicians, and the public — driving awareness and real change.

Explore the work

Communications advisor helping organizations turn complex topics into clear, engaging, and impactful communication.

With a background in journalism and media, I combine storytelling, SEO, and social media strategy to create content that reaches and resonates with the right audiences.

I have worked with leading media outlets such as TV 2, Danmarks Radio, and Aller Media, and now collaborate with companies and organizations to strengthen their communication across platforms.

Visibility where it matters most.

I produce and share honest, engaging, and inspiring communication about diseases — including rare and severe conditions — making complex medical realities accessible and emotionally resonant for the public.

I believe that communication can be a form of care.

Patient interview Capturing experiences

Deep listening.
Strategic telling.

  • Interviews with patients, families, and clinicians to capture lived experiences
  • Clear, emotionally attuned content for social media and websites
  • Strategic storytelling that fosters awareness, earlier diagnosis, and better outcomes
Clinic environment Narrating lives

Bridging the gap.

My work brings visibility and understanding to patient communities often overlooked. My communication style is both informative and deeply human — helping stakeholders connect across disciplines and lived experiences.

Because behind every diagnosis is a person waiting to be heard.

Community event Ever eventful

Sebastian is a professional with an eye for detail. He works quickly and flexibly and is also very kind and service-oriented. Furthermore, he handles both film and photography well, so it is a pleasure to work with him.

Eveline Scheres, Managing Director, EKHA European Kidney Health Alliance (EKHA)

It is a pleasure to work with Sebastian. He approaches the tasks professionally, delivers on time and remains open and flexible throughout the process. His calm appearance fosters trust in both the people he interviews and, not least, us, with whom he collaborates.

Gitte Elgaard, Marketing Director, Nordics, Ascendis Pharma

Since Sebastian joined CompCure, our communication has been elevated, especially through aligned and targeted omnichannel planning and execution. By supporting the translation of complex science into clear, relevant, and compassionate multiformat content, Sebastian has contributed to the increasing global awareness of rare complement-mediated kidney diseases, and the positioning of CompCure in this specific field. Beyond that, his collaboration with our diverse group of multidisciplinary partners, which includes patient organizations, physician networks, pharmaceutical companies, etc. has been professional and productive.

Marianne Silkjær Nielsen, Founder & Chair, CompCure

I have had the pleasure to work alongside Sebastian for our “ERKNet Annual Meeting 2024” in Venice, Italy. Sebastian supported with the creation of PR content, such as the planning and execution of short films which were shot on site. His work helped us strengthen our presence, credibility and authenticity in our rare kidney disease community and beyond. We cannot say one negative thing about working with Sebastian, from the beginning the collaboration was structured, the communication always pleasant and throughout the whole process, we had complete trust that the projects would be a success.

Anna Dengler, Project Assistance / Social Media / Event Manager, ERKNet

Selected work.

CompCure Intro Video
Patient Story Video
Spotlight Video
ERKNet Annual Meeting 2024 — Interviews
Guide on Living with Rare Kidney Diseases
Newsletter
Policy/Advocacy Articles
Ascendis Pharma CompCure Wunders Gesundheit ERKNet EKHA NephCure

Through my assignments for CompCure, I have worked on projects for pharmaceutical companies incl. Novartis and Sobi, and renal organizations, incl. International Society of Nephrology (ISN).

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